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  • About Us
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  • Programs
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  • Information
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8 events found.

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  • April 2023

  • Wed 12

    Life Without Modulators Small Group Discussion

    April 12, 2023 @ 7:00 pm - 8:15 pm
    On-line Webinar

    An announcement from the Cystic Fibrosis Foundation: While many are celebrating the progression of CFTR modulators (Trikafta®, Symdeko®, Kalydeco® and Orkambi®), others are waiting for their “wonder drug.” To support […]

  • Wed 26

    ResearchCon 2023 – Day 1

    April 26, 2023 @ 6:00 pm - 10:00 pm
    On-line Webinar

    Check our Announcement for details.Check the ResearchCon 2023 page for a full schedule of sessions for both days and a link to registration.Vea la página de registro de ResearchCon 2023 […]

  • Thu 27

    ResearchCon 2023 – Day 2

    April 27, 2023 @ 6:00 pm - 10:00 pm

    Check our Announcement for details.Check the ResearchCon 2023 page for a full schedule of sessions for both days and a link to registration.Vea la página de registro de ResearchCon 2023 […]

  • June 2023

  • Tue 13

    CFF NextBreath 2023 Day 1

    June 13, 2023 @ 6:00 am - 8:30 pm
    On-line Webinar

    NextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website:NextBreath is an online two-day event for people with CF who are living with established lung […]

  • Wed 14

    CFF NextBreath 2023 Day 2

    June 14, 2023 @ 6:00 pm - 8:30 pm
    On-line Webinar

    NextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website:NextBreath is an online two-day event for people with CF who are living with established lung […]

  • October 2023

  • Thu 19

    Rochester’s Finest 2023

    October 19, 2023 @ 6:00 pm - 9:00 pm
    Casa Larga Vineyard 2287 Turk Hill Road, Fairport, NY, United States

    From Cystic Fibrosis Foundation Western NY Chapter: Rochester’s Finest honorees represent the area’s most accomplished and innovative young leaders who commit to raise funds and awareness for the CF Foundation […]

  • February 2024

  • Fri 9

    BreatheCon 2024 – Day 1

    February 9, 2024 @ 6:30 pm - 10:30 pm
    On-line Webinar

    From the Cystic Fibrosis Foundation: On Feb. 9 & 10, 2024, the Cystic Fibrosis Foundation will host BreatheCon, a unique event for adults with cystic fibrosis to virtually gather with […]

  • Sat 10

    BreatheCon 2024 – Day 2

    February 10, 2024 @ 1:30 pm - 6:15 pm
    On-line Webinar

    From the Cystic Fibrosis Foundation: On Feb. 9 & 10, 2024, the Cystic Fibrosis Foundation will host BreatheCon, a unique event for adults with cystic fibrosis to virtually gather with […]

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