An announcement from the Cystic Fibrosis Foundation: While many are celebrating the progression of CFTR modulators (Trikafta®, Symdeko®, Kalydeco® and Orkambi®), others are waiting for their “wonder drug.” To support the members of the CF community who are not benefiting from a modulator, the CF Foundation is hosting a small group discussion to share experiences […]
Check our Announcement for details.Check the ResearchCon 2023 page for a full schedule of sessions for both days and a link to registration.Vea la página de registro de ResearchCon 2023 en español.
Check our Announcement for details.Check the ResearchCon 2023 page for a full schedule of sessions for both days and a link to registration.Vea la página de registro de ResearchCon 2023 en español.
NextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website:NextBreath is an online two-day event for people with CF who are living with established lung disease or experiencing lung health complications, and/or living post lung transplant, as well as their family members and caregivers, to find support and engage with […]
NextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website:NextBreath is an online two-day event for people with CF who are living with established lung disease or experiencing lung health complications, and/or living post lung transplant, as well as their family members and caregivers, to find support and engage with […]
From Cystic Fibrosis Foundation Western NY Chapter: Rochester’s Finest honorees represent the area’s most accomplished and innovative young leaders who commit to raise funds and awareness for the CF Foundation leading up to the Celebration in October. The chosen honorees exemplify leadership qualities, are active in their communities, and have excelled in business. Those selected […]
From the Cystic Fibrosis Foundation: On Feb. 9 & 10, 2024, the Cystic Fibrosis Foundation will host BreatheCon, a unique event for adults with cystic fibrosis to virtually gather with one another in a welcoming, inclusive space where you can be your authentic self. No matter if you are seeking to learn from others, share […]
From the Cystic Fibrosis Foundation: On Feb. 9 & 10, 2024, the Cystic Fibrosis Foundation will host BreatheCon, a unique event for adults with cystic fibrosis to virtually gather with one another in a welcoming, inclusive space where you can be your authentic self. No matter if you are seeking to learn from others, share […]