NextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website:NextBreath is an online two-day event for people with CF who are living with established lung disease or experiencing lung health complications, and/or living post lung transplant, as well as their family members and caregivers, to find support and engage with […]
Swinging for a Cure is organized by ROC Cystic Fibrosis Awareness, a local charitable organization. The funds raised through this tournament go to the Cystic Fibrosis Foundation. Go to https://roccfa.org/swinging-fore-a-cure to register for the tournament.
The Living with CF Golf Tournament returns to Southern Meadows Golf Club on Saturday, September 9, 2023. Details, including new payment options and online registration, are presented in Announcing Living with CF Golf Tournament 2023. You can also get the details and a paper entry form by downloading the CFFC Golf Brochure_2023 You can now […]
Cystic Fibrosis Canada is hosting a webinar dealing with issues arising from the aging of the CF population. Here is the announcement from Cystic Fibrosis Canada:Are you curious about the challenges and complexities faced by individuals with cystic fibrosis (CF) as they age? Join us for a webinar featuring Dr. Anne Stephenson, Medical Director Canadian […]
From Cystic Fibrosis Foundation Western NY Chapter: Rochester’s Finest honorees represent the area’s most accomplished and innovative young leaders who commit to raise funds and awareness for the CF Foundation leading up to the Celebration in October. The chosen honorees exemplify leadership qualities, are active in their communities, and have excelled in business. Those selected […]
From the Cystic Fibrosis Foundation: On Feb. 9 & 10, 2024, the Cystic Fibrosis Foundation will host BreatheCon, a unique event for adults with cystic fibrosis to virtually gather with one another in a welcoming, inclusive space where you can be your authentic self. No matter if you are seeking to learn from others, share […]
From the Cystic Fibrosis Foundation: On Feb. 9 & 10, 2024, the Cystic Fibrosis Foundation will host BreatheCon, a unique event for adults with cystic fibrosis to virtually gather with one another in a welcoming, inclusive space where you can be your authentic self. No matter if you are seeking to learn from others, share […]
2023 was a great year for the Cystic Fibrosis Foundation - Western New York Chapter, and now it's time to celebrate! We invite you to join us as we honor our community leaders and find out what's to come in 2024. Wednesday, February 28, 2024, 5:30pm - Pane Vino on the Avenue, Rochester Register Here
The Cystic Fibrosis Foundation has issued the following invitation to "Life Without Modulators Small Group Discussion." While many are celebrating the progression of CFTR modulators (Trikafta®, Symdeko®, Kalydeco® and Orkambi®), others are waiting for the next highly effective treatment. To support the members of the CF community who are not benefiting from a modulator, the […]
The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image.Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other […]
The invitation from the Cystic Fibrosis Foundation:You are invited to join the 6th annual ResearchCon on April 30-May 1, where you can interact virtually with researchers and clinicians and develop a deeper understanding of CF-related research and science topics. Past attendees have said that ResearchCon helps them better advocate for the changing health needs of […]
The invitation from the Cystic Fibrosis Foundation:You are invited to join the 6th annual ResearchCon on April 30-May 1, where you can interact virtually with researchers and clinicians and develop a deeper understanding of CF-related research and science topics. Past attendees have said that ResearchCon helps them better advocate for the changing health needs of […]