The Cystic Fibrosis Foundation has issued the following invitation to "Life Without Modulators Small Group Discussion." While many are celebrating the progression of CFTR modulators (Trikafta®, Symdeko®, Kalydeco® and Orkambi®), others are waiting for the next highly effective treatment. To support the members of the CF community who are not benefiting from a modulator, the […]
The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image.Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other […]
The invitation from the Cystic Fibrosis Foundation:You are invited to join the 6th annual ResearchCon on April 30-May 1, where you can interact virtually with researchers and clinicians and develop a deeper understanding of CF-related research and science topics. Past attendees have said that ResearchCon helps them better advocate for the changing health needs of […]
The invitation from the Cystic Fibrosis Foundation:You are invited to join the 6th annual ResearchCon on April 30-May 1, where you can interact virtually with researchers and clinicians and develop a deeper understanding of CF-related research and science topics. Past attendees have said that ResearchCon helps them better advocate for the changing health needs of […]
Great Strides is the Cystic Fibrosis Foundation's largest national fundraiser that brings together the community to raise awareness and funds towards our mission of finding a cure for all those living with cystic fibrosis. Registration is open! Join us in Rochester on Sunday, May 19. Register Here
August 4 @ 1:00 pm - 5:00 pm CFFC is pleased to announce the return to Family Day. Please join us with your family and supporters for an afternoon connecting, learning and having fun with our one-of-a-kind CF community.Admission to Wickham Farms for CFFC Family Day is FREE to everyone associated with the Rochester NY […]
September 7 @ 8:30 am - 1:00 pm Happy 2024! Celebrate the end of summer, while raising funds for CFFC programs, by playing in the Living with CF Golf tournament. This year's edition will be held on Saturday, September 7th. We will once again be hosted by Southern Meadows Golf Club in Rush, NY. Get […]
From the Cystic Fibrosis Foundation: Interested in learning about the latest cystic fibrosis research and care highlights from the North American Cystic Fibrosis Conference (NACFC)? Register for our live webinar November 12 at 7 p.m. ET to hear key takeaways from this year’s conference and have an opportunity to ask the experts your questions. REGISTER […]
The Cystic Fibrosis Foundation has extended the following invitation: Join us for an inspiring conversation with Michael Boyle, MD, President and CEO, and Irena Barisic, Executive VP and Chief Operating & Financial Officer, as they share the Foundation’s vision for 2025. After opening remarks, leaders from across the Foundation will be on hand to answer […]
Description from Cystic Fibrosis Foundation: This small group discussion is for adults with CF and offers a supportive environment to connect with others who share similar experiences. There is no set agenda in these groups, but topics may include discussion of hormones, incontinence and UTIs, side effects of medication, or menopause. Join the conversation to […]
Here's the announcement from the Western New York Chapter of the Cystic Fibrosis Foundation: Celebrate the moment with us at the Western New York Chapter of the Cystic Fibrosis Foundation's Buffalo and Rochester annual meetings, which will be held on Thursday, February 27, 2025 in Rochester and Thursday, March 6, 2025 in Buffalo. During this […]
Description from Cystic Fibrosis Foundation: This small group discussion is for adults with CF 40+ and offers a supportive environment to connect with others who share similar experiences. Previous topic discussions have ranged from navigating changes in health to work transitions and redefining your expectations of aging. Join the conversation to share insights, foster connections, […]