September 7 @ 8:30 am - 1:00 pm Happy 2024! Celebrate the end of summer, while raising funds for CFFC programs, by playing in the Living with CF Golf tournament. This year's edition will be held on Saturday, September 7th. We will once again be hosted by Southern Meadows Golf Club in Rush, NY. Get […]
From the Cystic Fibrosis Foundation: Interested in learning about the latest cystic fibrosis research and care highlights from the North American Cystic Fibrosis Conference (NACFC)? Register for our live webinar November 12 at 7 p.m. ET to hear key takeaways from this year’s conference and have an opportunity to ask the experts your questions. REGISTER […]
The Cystic Fibrosis Foundation has extended the following invitation: Join us for an inspiring conversation with Michael Boyle, MD, President and CEO, and Irena Barisic, Executive VP and Chief Operating & Financial Officer, as they share the Foundation’s vision for 2025. After opening remarks, leaders from across the Foundation will be on hand to answer […]
From the Cystic Fibrosis Foundation: Whether you were diagnosed with cystic fibrosis at birth or recently received a diagnosis, there’s a spot for you at BreatheCon! This two-day virtual experience offers opportunities to share stories and perspectives with people who truly “get it.” Attendees will have access to panels, group chats, and social events, including a […]
From the Cystic Fibrosis Foundation: Whether you were diagnosed with cystic fibrosis at birth or recently received a diagnosis, there’s a spot for you at BreatheCon! This two-day virtual experience offers opportunities to share stories and perspectives with people who truly “get it.” Attendees will have access to panels, group chats, and social events, including a […]
Description from Cystic Fibrosis Foundation: This small group discussion is for adults with CF and offers a supportive environment to connect with others who share similar experiences. There is no set agenda in these groups, but topics may include discussion of hormones, incontinence and UTIs, side effects of medication, or menopause. Join the conversation to […]
Here's the announcement from the Western New York Chapter of the Cystic Fibrosis Foundation: Celebrate the moment with us at the Western New York Chapter of the Cystic Fibrosis Foundation's Buffalo and Rochester annual meetings, which will be held on Thursday, February 27, 2025 in Rochester and Thursday, March 6, 2025 in Buffalo. During this […]
Description from Cystic Fibrosis Foundation: This small group discussion is for adults with CF 40+ and offers a supportive environment to connect with others who share similar experiences. Previous topic discussions have ranged from navigating changes in health to work transitions and redefining your expectations of aging. Join the conversation to share insights, foster connections, […]
The annual Kit Taylor Memorial Lectureship, established in the memory of Kathryn Irene Taylor, will be held on April 22, 2025. Our visiting lecturer this year will be Dr. Michael Narkewicz. Dr. Narkewicz is nationally recognized for his expertise in pediatric hepatology, liver transplantation and cystic fibrosis liver disease. Dr. Narkewicz has been an important […]
Check out the event page for information on the 2025 Great Strides at Genesee Valley Park on May 18th. Great Strides Rochester 2025
The announcement from the Cystic Fibrosis Foundation: Join us at ResearchCon May 6! Everyone in the cystic fibrosis community is invited to this one-day, virtual event to discuss the latest in CF-related science, research, clinical care, and the lived experience alongside others living with and studying the disease. This event will cover critical topics directly […]
From the Western NY Chapter of the Cystic Fibrosis Foundation: On behalf of Michael Sellars, President of ROC CF Awareness, Inc, and Volunteer Leadership Chair for the inaugural Rochester 65 Roses Golf Tournament, I am thrilled to announce that the Cystic Fibrosis Foundation in Rochester, NY, is adding a Golf Tournament to our events calendar! […]