12 events found.
Events
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Genesee Valley Park - Roundhouse Shelter Moore Road, Rochester, NY, United States
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2023 AbbVie CF Scholarship Deadline
For details about this year's AbbVie CF Scholarship program, and a link to the application site, read our post 2023 AbbVie CF Scholarship Announced.
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CFF NextBreath 2023 Day 1
On-line WebinarNextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website:NextBreath is an online two-day event for people with CF who are living with established lung […]
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CFF NextBreath 2023 Day 2
On-line WebinarNextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website:NextBreath is an online two-day event for people with CF who are living with established lung […]
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Swinging Fore a Cure Golf Tournament 2023
Mill Creek Golf Club 128 Cedars Avenue, Churchville, NY, United StatesSwinging for a Cure is organized by ROC Cystic Fibrosis Awareness, a local charitable organization. The funds raised through this tournament go to the Cystic Fibrosis Foundation. Go to https://roccfa.org/swinging-fore-a-cure […]
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CFFC Living with CF Golf Tournament 2023
Southern Meadows Golf Club 1025 Rush Scottsville Road, Rush, NY, United StatesThe Living with CF Golf Tournament returns to Southern Meadows Golf Club on Saturday, September 9, 2023. Details, including new payment options and online registration, are presented in Announcing Living […]
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Webinar: Getting Older and Wiser: The Complexities of Ageing with Cystic Fibrosis
On-line WebinarCystic Fibrosis Canada is hosting a webinar dealing with issues arising from the aging of the CF population. Here is the announcement from Cystic Fibrosis Canada:Are you curious about the […]
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Rochester’s Finest 2023
Casa Larga Vineyard 2287 Turk Hill Road, Fairport, NY, United StatesFrom Cystic Fibrosis Foundation Western NY Chapter: Rochester’s Finest honorees represent the area’s most accomplished and innovative young leaders who commit to raise funds and awareness for the CF Foundation […]
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BreatheCon 2024 – Day 1
On-line WebinarFrom the Cystic Fibrosis Foundation: On Feb. 9 & 10, 2024, the Cystic Fibrosis Foundation will host BreatheCon, a unique event for adults with cystic fibrosis to virtually gather with […]
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BreatheCon 2024 – Day 2
On-line WebinarFrom the Cystic Fibrosis Foundation: On Feb. 9 & 10, 2024, the Cystic Fibrosis Foundation will host BreatheCon, a unique event for adults with cystic fibrosis to virtually gather with […]
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WNY Annual Meeting & Awards Celebration
Pane Vino on the Avenue 3400 Monroe Ave, Rochester, NY, United States2023 was a great year for the Cystic Fibrosis Foundation - Western New York Chapter, and now it's time to celebrate! We invite you to join us as we honor […]
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Life Without Modulators Small Group Discussion
On-line WebinarThe Cystic Fibrosis Foundation has issued the following invitation to "Life Without Modulators Small Group Discussion." While many are celebrating the progression of CFTR modulators (Trikafta®, Symdeko®, Kalydeco® and Orkambi®), others are waiting for the next highly effective treatment. To support the members of the CF community who are not benefiting from a modulator, the […]