WNY Annual Meeting & Awards Celebration
2023 was a great year for the Cystic Fibrosis Foundation - Western New York Chapter, and now it's time to celebrate! We invite you to join us as we honor […]
12 events found.
Events
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Pane Vino on the Avenue 3400 Monroe Ave, Rochester, NY, United States
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Life Without Modulators Small Group Discussion
On-line WebinarThe Cystic Fibrosis Foundation has issued the following invitation to "Life Without Modulators Small Group Discussion." While many are celebrating the progression of CFTR modulators (Trikafta®, Symdeko®, Kalydeco® and Orkambi®), others are waiting for the next highly effective treatment. To support the members of the CF community who are not benefiting from a modulator, the […]
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Small Group Discussion – Body Image
On-line WebinarThe Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image.Adults with CF are invited to join an open conversation around body image. Based on BreatheCon 2024 feedback and community requests, the CF Foundation is offering a small group discussion where adults with CF can share experiences with each other […]
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ResearchCon 2024 – Day 1
On-line WebinarThe invitation from the Cystic Fibrosis Foundation:You are invited to join the 6th annual ResearchCon on April 30-May 1, where you can interact virtually with researchers and clinicians and develop a deeper understanding of CF-related research and science topics. Past attendees have said that ResearchCon helps them better advocate for the changing health needs of […]
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ResearchCon 2024 – Day 2
On-line WebinarThe invitation from the Cystic Fibrosis Foundation:You are invited to join the 6th annual ResearchCon on April 30-May 1, where you can interact virtually with researchers and clinicians and develop a deeper understanding of CF-related research and science topics. Past attendees have said that ResearchCon helps them better advocate for the changing health needs of […]
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Rochester Great Strides 2024
Genesee Valley Park - Roundhouse Shelter Moore Road, Rochester, NY, United StatesGreat Strides is the Cystic Fibrosis Foundation's largest national fundraiser that brings together the community to raise awareness and funds towards our mission of finding a cure for all those living with cystic fibrosis. Registration is open! Join us in Rochester on Sunday, May 19. Register Here
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Family Day 2024
Wickham Farms 1315 Sweets Corners Rd, Penfield, NY, United StatesAugust 4 @ 1:00 pm - 5:00 pm CFFC is pleased to announce the return to Family Day. Please join us with your family and supporters for an afternoon connecting, […]
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Living with CF Golf Tournament 2024
Southern Meadows Golf Club 1025 Rush Scottsville Road, Rush, NY, United StatesSeptember 7 @ 8:30 am - 1:00 pm Happy 2024! Celebrate the end of summer, while raising funds for CFFC programs, by playing in the Living with CF Golf tournament. […]
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NACFC 2024 Highlights Webinar
On-line WebinarFrom the Cystic Fibrosis Foundation: Interested in learning about the latest cystic fibrosis research and care highlights from the North American Cystic Fibrosis Conference (NACFC)? Register for our live webinar November 12 at 7 p.m. ET to hear key takeaways from this year’s conference and have an opportunity to ask the experts your questions. REGISTER […]
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Cystic Fibrosis Foundation Annual Meeting
On-line WebinarThe Cystic Fibrosis Foundation has extended the following invitation: Join us for an inspiring conversation with Michael Boyle, MD, President and CEO, and Irena Barisic, Executive VP and Chief Operating & Financial Officer, as they share the Foundation’s vision for 2025. After opening remarks, leaders from across the Foundation will be on hand to answer […]
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BreatheCon 2025 – Day 1
On-line WebinarFrom the Cystic Fibrosis Foundation: Whether you were diagnosed with cystic fibrosis at birth or recently received a diagnosis, there’s a spot for you at BreatheCon! This two-day virtual experience offers opportunities to share stories and perspectives with people who truly “get it.” Attendees will have access to panels, group chats, and social events, including a […]
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BreatheCon 2025 – Day 2
On-line WebinarFrom the Cystic Fibrosis Foundation: Whether you were diagnosed with cystic fibrosis at birth or recently received a diagnosis, there’s a spot for you at BreatheCon! This two-day virtual experience offers opportunities to share stories and perspectives with people who truly “get it.” Attendees will have access to panels, group chats, and social events, including a […]