Breath of Life Gala

Details will be added as they become available.

Life Without Modulators Small Group Discussion

On-line Webinar

An announcement from the Cystic Fibrosis Foundation: While many are celebrating the progression of CFTR modulators (Trikafta®, Symdeko®, Kalydeco® and Orkambi®), others are waiting for their “wonder drug.” To support the members of the CF community who are not benefiting from a modulator, the CF Foundation is hosting a small group discussion to share experiences […]

43rd Annual Kit Taylor Memorial Lecture

Golisano Children's Hospital 601 Elmwood Avenue, Rochester, NY, United States

/*! elementor - v3.11.5 - 14-03-2023 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} An important local tradition continues with the 43rd Annual Kit Taylor Memorial Lecture. This year, Dr. Virginia Stallings will present an "Update on Nutrition Care for Children and Adults with CF." You can see the details in the flyer to the left.As in […]

ResearchCon 2023 – Day 1

On-line Webinar

Check our Announcement for details.Check the ResearchCon 2023 page for a full schedule of sessions for both days and a link to registration.Vea la página de registro de ResearchCon 2023 en español.  

ResearchCon 2023 – Day 2

Check our Announcement for details.Check the ResearchCon 2023 page for a full schedule of sessions for both days and a link to registration.Vea la página de registro de ResearchCon 2023 en español.

2023 AbbVie CF Scholarship Deadline

For details about this year's AbbVie CF Scholarship program, and a link to the application site, read our post 2023 AbbVie CF Scholarship Announced.

CFF NextBreath 2023 Day 1

On-line Webinar

NextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website:NextBreath is an online two-day event for people with CF who are living with established lung disease or experiencing lung health complications, and/or living post lung transplant, as well as their family members and caregivers, to find support and engage with […]

CFF NextBreath 2023 Day 2

On-line Webinar

NextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website:NextBreath is an online two-day event for people with CF who are living with established lung disease or experiencing lung health complications, and/or living post lung transplant, as well as their family members and caregivers, to find support and engage with […]

Swinging Fore a Cure Golf Tournament 2023

Mill Creek Golf Club 128 Cedars Avenue, Churchville, NY, United States

Swinging for a Cure is organized by ROC Cystic Fibrosis Awareness, a local charitable organization. The funds raised through this tournament go to the Cystic Fibrosis Foundation. Go to https://roccfa.org/swinging-fore-a-cure to register for the tournament.