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  • About Us
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  • Programs
    • Hospital Help Program
    • Clinic Baggies
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    • Email Newsletter
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  • Information
    • National CF Organizations
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8 events found.

Events

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  • November 2022

  • Sat 5

    Breath of Life Gala

    November 5, 2022 @ 5:00 pm - 10:00 pm

    Details will be added as they become available.

  • April 2023

  • Wed 12

    Life Without Modulators Small Group Discussion

    April 12, 2023 @ 7:00 pm - 8:15 pm
    On-line Webinar

    An announcement from the Cystic Fibrosis Foundation: While many are celebrating the progression of CFTR modulators (Trikafta®, Symdeko®, Kalydeco® and Orkambi®), others are waiting for their “wonder drug.” To support the members of the CF community who are not benefiting from a modulator, the CF Foundation is hosting a small group discussion to share experiences […]

  • Tue 18

    43rd Annual Kit Taylor Memorial Lecture

    April 18, 2023 @ 7:00 pm - 8:30 pm
    Golisano Children's Hospital 601 Elmwood Avenue, Rochester, NY, United States

    /*! elementor - v3.11.5 - 14-03-2023 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} An important local tradition continues with the 43rd Annual Kit Taylor Memorial Lecture. This year, Dr. Virginia Stallings […]

  • Wed 26

    ResearchCon 2023 – Day 1

    April 26, 2023 @ 6:00 pm - 10:00 pm
    On-line Webinar

    Check our Announcement for details.Check the ResearchCon 2023 page for a full schedule of sessions for both days and a link to registration.Vea la página de registro de ResearchCon 2023 en español.  

  • Thu 27

    ResearchCon 2023 – Day 2

    April 27, 2023 @ 6:00 pm - 10:00 pm

    Check our Announcement for details.Check the ResearchCon 2023 page for a full schedule of sessions for both days and a link to registration.Vea la página de registro de ResearchCon 2023 en español.

  • May 2023

  • Sun 21

    Great Strides 2023 – Rochester

    May 21, 2023 @ 10:00 am - 1:00 pm
    Genesee Valley Park - Roundhouse Shelter Moore Road, Rochester, NY, United States
  • Wed 24

    2023 AbbVie CF Scholarship Deadline

    May 24, 2023 @ 10:00 am - 11:00 am

    For details about this year's AbbVie CF Scholarship program, and a link to the application site, read our post 2023 AbbVie CF Scholarship Announced.

  • June 2023

  • Tue 13

    CFF NextBreath 2023 Day 1

    June 13, 2023 @ 6:00 am - 8:30 pm
    On-line Webinar

    NextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website:NextBreath is an online two-day event for people with CF who are living with established lung […]

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