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  • About Us
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    • Testimonials
    • Search CFFC
  • Programs
    • Hospital Help Program
    • Clinic Baggies
    • Holiday Decor
    • Email Newsletter
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    • Emergency Fund
    • Andrew W. Eve Memorial Scholarship
  • Information
    • National CF Organizations
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    • Kit Taylor Memorial Lectures
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12 events found.

Events

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  • November 2022

  • Sat 5

    Breath of Life Gala

    November 5, 2022 @ 5:00 pm - 10:00 pm

    Details will be added as they become available.

  • April 2023

  • Wed 12

    Life Without Modulators Small Group Discussion

    April 12, 2023 @ 7:00 pm - 8:15 pm
    On-line Webinar

    An announcement from the Cystic Fibrosis Foundation: While many are celebrating the progression of CFTR modulators (Trikafta®, Symdeko®, Kalydeco® and Orkambi®), others are waiting for their “wonder drug.” To support the members of the CF community who are not benefiting from a modulator, the CF Foundation is hosting a small group discussion to share experiences […]

  • Tue 18

    43rd Annual Kit Taylor Memorial Lecture

    April 18, 2023 @ 7:00 pm - 8:30 pm
    Golisano Children's Hospital 601 Elmwood Avenue, Rochester, NY, United States

    /*! elementor - v3.11.5 - 14-03-2023 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} An important local tradition continues with the 43rd Annual Kit Taylor Memorial Lecture. This year, Dr. Virginia Stallings […]

  • Wed 26

    ResearchCon 2023 – Day 1

    April 26, 2023 @ 6:00 pm - 10:00 pm
    On-line Webinar

    Check our Announcement for details.Check the ResearchCon 2023 page for a full schedule of sessions for both days and a link to registration.Vea la página de registro de ResearchCon 2023 en español.  

  • Thu 27

    ResearchCon 2023 – Day 2

    April 27, 2023 @ 6:00 pm - 10:00 pm

    Check our Announcement for details.Check the ResearchCon 2023 page for a full schedule of sessions for both days and a link to registration.Vea la página de registro de ResearchCon 2023 en español.

  • May 2023

  • Sun 21

    Great Strides 2023 – Rochester

    May 21, 2023 @ 10:00 am - 1:00 pm
    Genesee Valley Park - Roundhouse Shelter Moore Road, Rochester, NY, United States
  • Wed 24

    2023 AbbVie CF Scholarship Deadline

    May 24, 2023 @ 10:00 am - 11:00 am

    For details about this year's AbbVie CF Scholarship program, and a link to the application site, read our post 2023 AbbVie CF Scholarship Announced.

  • June 2023

  • Tue 13

    CFF NextBreath 2023 Day 1

    June 13, 2023 @ 6:00 am - 8:30 pm
    On-line Webinar

    NextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website:NextBreath is an online two-day event for people with CF who are living with established lung […]

  • Wed 14

    CFF NextBreath 2023 Day 2

    June 14, 2023 @ 6:00 pm - 8:30 pm
    On-line Webinar

    NextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website:NextBreath is an online two-day event for people with CF who are living with established lung […]

  • July 2023

  • Sat 29

    Swinging Fore a Cure Golf Tournament 2023

    July 29, 2023 @ 12:00 pm - 6:00 pm
    Mill Creek Golf Club 128 Cedars Avenue, Churchville, NY, United States

    Swinging for a Cure is organized by ROC Cystic Fibrosis Awareness, a local charitable organization. The funds raised through this tournament go to the Cystic Fibrosis Foundation. Go to https://roccfa.org/swinging-fore-a-cure […]

  • September 2023

  • Sat 9

    CFFC Living with CF Golf Tournament 2023

    September 9, 2023 @ 8:30 am - 1:00 pm
    Southern Meadows Golf Club 1025 Rush Scottsville Road, Rush, NY, United States

    The Living with CF Golf Tournament returns to Southern Meadows Golf Club on Saturday, September 9, 2023. Details, including new payment options and online registration, are presented in Announcing Living with CF Golf Tournament 2023. You can also get the details and a paper entry form by downloading the CFFC Golf Brochure_2023  You can now […]

    $70
  • Mon 25

    Webinar: Getting Older and Wiser: The Complexities of Ageing with Cystic Fibrosis

    September 25, 2023 @ 7:00 pm
    On-line Webinar

    Cystic Fibrosis Canada is hosting a webinar dealing with issues arising from the aging of the CF population. Here is the announcement from Cystic Fibrosis Canada:Are you curious about the challenges and complexities faced by individuals with cystic fibrosis (CF) as they age? Join us for a webinar featuring  Dr. Anne Stephenson, Medical Director Canadian […]

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