Cystic Fibrosis Foundation is seeking input on two aspects of life with CF: liver disease and CF related diabetes. The text of the announcements, including links to the related surveys, are presented below.
CF Liver Disease Clinical Care Guidelines
the CF Foundation will be developing CF Liver Disease Guidelines for individuals with cystic fibrosis. If you have experience with liver, biliary, or gallbladder issues, there are two opportunities to contribute to the development of these new guidelines.
1. Inform the Scope of Guidelines
To help shape these guidelines, we kindly request that you complete the anonymous, 10-minute survey. The survey asks about your experience with and practice patterns around liver, biliary, and gallbladder disease; you may choose not to answer any or all questions. The survey will be distributed to members of the CF care team, individuals with CF and their family members, and hepatologists. The survey will close on Tuesday, June 2nd, 2020.
2. Apply to join the CF Liver Disease Guidelines Committee
We are looking for multiple community members who have CF liver, biliary, or gallbladder experience to join the Guidelines Committee. This committee will review current literature to develop recommendation statements for liver, biliary, and gallbladder care in individuals with CF.
Click here to learn more about the expectations and goals of this group. To apply for a position on the CF Liver Disease Guidelines Committee, please click on the button below. This questionnaire will close on Tuesday, June 2nd, 2020. Leaders of the committee will review completed applications and select finalists based on the information provided.
1. Inform the discussion
- Priorities for future endocrine research
- Needs regarding CFRD-related education
- Perspectives on CFRD devices and technologies