Partnering with Your Care Team
The keynote speakers at three CFFC Education Day events talked about the importance of the involvement of people living with CF (and their families) in the management of their care. […]
Social Behaviors and Perceptions of Tobacco and Marijuana
The CF Foundation is again seeking input from the CF community. Here is the text of their request: The Cystic Fibrosis Center of Lucille Packard Children’s Hospital at Stanford University […]
Breathe for Bea Foundation Scholarship
The Breathe for Bea Foundation recently opened their cystic fibrosis scholarship program to people living with CF regardless of their state of residence. The foundation also offers other financial assistance […]
38th Kit Taylor Lecture Recap
The presentation by Dr. Steven Freedman at the 38th Kit Taylor Memorial Lecture met the high expectations we have developed for this annual event. His discussion, Beyond the Lungs – […]
Transplant Booklets from Cystic Fibrosis Trust
Cystic Fibrosis Trust, an organization similar to Cystic Fibrosis Foundation that serves the United Kingdom, recently published three booklets that provide information on the various aspects of transplant. Although lung […]
CF Health Guides for Women
The Boston CF Center and Center for Young Women’s Health at Boston Children’s Hospital has produced a series of health guides written specifically for adolescent and young adult women. According to […]
Primer on Gene Editing and Stem Cells
The Journal of Cystic Fibrosis has published an article that provides detailed background on the science of gene editing and stem cells specifically relating to CF. One section of the […]
Community News – Allie Davis
As part of our mission to share information across the local CF community, we will publish significant events impacting individual members of the community. We would prefer to spread good […]
New Mental Health Resources
CFF recently issued the following announcement: Happy New Year! We are pleased to announce a new resource that is available to you. “CF and Mental Health: Building Resilience – A […]
Know Your CFTR Mutation
Understanding the mutation that produces your particular version of CF is more than scientific curiosity; it holds the key to the progression of the disease and the treatments that may […]