Life Without Modulators Small Group Discussion

On-line Webinar

An announcement from the Cystic Fibrosis Foundation: While many are celebrating the progression of CFTR modulators (Trikafta®, Symdeko®, Kalydeco® and Orkambi®), others are waiting for their “wonder drug.” To support […]

ResearchCon 2023 – Day 1

On-line Webinar

Check our Announcement for details.Check the ResearchCon 2023 page for a full schedule of sessions for both days and a link to registration.Vea la página de registro de ResearchCon 2023 […]

ResearchCon 2023 – Day 2

Check our Announcement for details.Check the ResearchCon 2023 page for a full schedule of sessions for both days and a link to registration.Vea la página de registro de ResearchCon 2023 […]

CFF NextBreath 2023 Day 1

On-line Webinar

NextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website:NextBreath is an online two-day event for people with CF who are living with established lung […]

CFF NextBreath 2023 Day 2

On-line Webinar

NextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website:NextBreath is an online two-day event for people with CF who are living with established lung […]

Rochester’s Finest 2023

Casa Larga Vineyard 2287 Turk Hill Road, Fairport, NY, United States

From Cystic Fibrosis Foundation Western NY Chapter: Rochester’s Finest honorees represent the area’s most accomplished and innovative young leaders who commit to raise funds and awareness for the CF Foundation […]

BreatheCon 2024 – Day 1

On-line Webinar

From the Cystic Fibrosis Foundation: On Feb. 9 & 10, 2024, the Cystic Fibrosis Foundation will host BreatheCon, a unique event for adults with cystic fibrosis to virtually gather with […]

BreatheCon 2024 – Day 2

On-line Webinar

From the Cystic Fibrosis Foundation: On Feb. 9 & 10, 2024, the Cystic Fibrosis Foundation will host BreatheCon, a unique event for adults with cystic fibrosis to virtually gather with […]

WNY Annual Meeting & Awards Celebration

Pane Vino on the Avenue 3400 Monroe Ave, Rochester, NY, United States

2023 was a great year for the Cystic Fibrosis Foundation - Western New York Chapter, and now it's time to celebrate! We invite you to join us as we honor […]

Life Without Modulators Small Group Discussion

On-line Webinar

The Cystic Fibrosis Foundation has issued the following invitation to "Life Without Modulators Small Group Discussion." While many are celebrating the progression of CFTR modulators (Trikafta®, Symdeko®, Kalydeco® and Orkambi®), […]

Small Group Discussion – Body Image

On-line Webinar

The Cystic Fibrosis Foundation has shared the following announcement for an on-line discussion around body image.Adults with CF are invited to join an open conversation around body image. Based on […]