Life Without Modulators Small Group Discussion

On-line Webinar

An announcement from the Cystic Fibrosis Foundation: While many are celebrating the progression of CFTR modulators (Trikafta®, Symdeko®, Kalydeco® and Orkambi®), others are waiting for their “wonder drug.” To support […]

43rd Annual Kit Taylor Memorial Lecture

Golisano Children's Hospital 601 Elmwood Avenue, Rochester, NY, United States

/*! elementor - v3.11.5 - 14-03-2023 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} An important local tradition continues with the 43rd Annual Kit Taylor Memorial Lecture. This year, Dr. Virginia Stallings […]

ResearchCon 2023 – Day 1

On-line Webinar

Check our Announcement for details.Check the ResearchCon 2023 page for a full schedule of sessions for both days and a link to registration.Vea la página de registro de ResearchCon 2023 […]

ResearchCon 2023 – Day 2

Check our Announcement for details.Check the ResearchCon 2023 page for a full schedule of sessions for both days and a link to registration.Vea la página de registro de ResearchCon 2023 […]

2023 AbbVie CF Scholarship Deadline

For details about this year's AbbVie CF Scholarship program, and a link to the application site, read our post 2023 AbbVie CF Scholarship Announced.

CFF NextBreath 2023 Day 1

On-line Webinar

NextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website:NextBreath is an online two-day event for people with CF who are living with established lung […]

CFF NextBreath 2023 Day 2

On-line Webinar

NextBreath is a virtual session presented by the Cystic Fibrosis Foundation. From the CFF website:NextBreath is an online two-day event for people with CF who are living with established lung […]

Swinging Fore a Cure Golf Tournament 2023

Mill Creek Golf Club 128 Cedars Avenue, Churchville, NY, United States

Swinging for a Cure is organized by ROC Cystic Fibrosis Awareness, a local charitable organization. The funds raised through this tournament go to the Cystic Fibrosis Foundation. Go to https://roccfa.org/swinging-fore-a-cure […]

CFFC Living with CF Golf Tournament 2023

Southern Meadows Golf Club 1025 Rush Scottsville Road, Rush, NY, United States

The Living with CF Golf Tournament returns to Southern Meadows Golf Club on Saturday, September 9, 2023. Details, including new payment options and online registration, are presented in Announcing Living […]

$70

Rochester’s Finest 2023

Casa Larga Vineyard 2287 Turk Hill Road, Fairport, NY, United States

From Cystic Fibrosis Foundation Western NY Chapter: Rochester’s Finest honorees represent the area’s most accomplished and innovative young leaders who commit to raise funds and awareness for the CF Foundation […]