Living with CF Golf Tournament 2024
September 7 @ 8:30 am - 1:00 pm Happy 2024! Celebrate the end of summer, while raising funds for CFFC programs, by playing in the Living with CF Golf tournament. […]
September 7 @ 8:30 am - 1:00 pm Happy 2024! Celebrate the end of summer, while raising funds for CFFC programs, by playing in the Living with CF Golf tournament. […]
From the Cystic Fibrosis Foundation: Interested in learning about the latest cystic fibrosis research and care highlights from the North American Cystic Fibrosis Conference (NACFC)? Register for our live webinar […]
The Cystic Fibrosis Foundation has extended the following invitation: Join us for an inspiring conversation with Michael Boyle, MD, President and CEO, and Irena Barisic, Executive VP and Chief Operating […]
From the Cystic Fibrosis Foundation: Whether you were diagnosed with cystic fibrosis at birth or recently received a diagnosis, there’s a spot for you at BreatheCon! This two-day virtual experience […]
From the Cystic Fibrosis Foundation: Whether you were diagnosed with cystic fibrosis at birth or recently received a diagnosis, there’s a spot for you at BreatheCon! This two-day virtual experience […]
Description from Cystic Fibrosis Foundation: This small group discussion is for adults with CF and offers a supportive environment to connect with others who share similar experiences. There is no […]
Here's the announcement from the Western New York Chapter of the Cystic Fibrosis Foundation: Celebrate the moment with us at the Western New York Chapter of the Cystic Fibrosis Foundation's […]
Description from Cystic Fibrosis Foundation: This small group discussion is for adults with CF 40+ and offers a supportive environment to connect with others who share similar experiences. Previous topic […]
The annual Kit Taylor Memorial Lectureship, established in the memory of Kathryn Irene Taylor, will be held on April 22, 2025. Our visiting lecturer this year will be Dr. Michael Narkewicz. Dr. Narkewicz is nationally recognized for his expertise in pediatric hepatology, liver transplantation and cystic fibrosis liver disease. Dr. Narkewicz has been an important […]
Check out the event page for information on the 2025 Great Strides at Genesee Valley Park on May 18th. Great Strides Rochester 2025
The announcement from the Cystic Fibrosis Foundation: Join us at ResearchCon May 6! Everyone in the cystic fibrosis community is invited to this one-day, virtual event to discuss the latest […]
From the Western NY Chapter of the Cystic Fibrosis Foundation: On behalf of Michael Sellars, President of ROC CF Awareness, Inc, and Volunteer Leadership Chair for the inaugural Rochester 65 […]