Five Videos on CF Drug Pipeline
The CF Foundation released a series of five videos to provide updates on the research in major areas of CF treatments. The videos are brief (under three minutes) but provide […]
Kit Taylor Recap
The Kit Taylor Memorial Lecture never disappoints. The 36th installment of this annual event, held on April 4, 2016, continued the tradition of important and relevant topics presented by engaging […]
CFFC President Speaks to Genetics Counselors
Kori Tolbert Doherty, CFFC president and an adult living with CF, spoke to the annual conference of Counsyl, a genetic counseling company. Fortunately, her presentation was recorded and we are […]
CFFC Facebook Posts – March 2016
For those of you who don’t follow CFFC on Facebook, here are the original posts made to our page during March 2016. 03/04/2016 – Breaking boundaries: Stacy Motenko – Stacy […]
CFTR Mutations
Although cystic fibrosis is considered to be a single disease, we have all observed the wide range of symptoms experienced by people living with CF. A chart contained in the […]
CF Patient Registry Reports
The CF Foundation recently released their annual reports drawn from the analysis of the data collected in the CF Patient Registry. There is a lot of information – and hope […]
CFF’s New Department – Community Partnerships
The Cystic Fibrosis Foundation has appointed the former director of the Buffalo CF Center to lead a new department – Community Parnerships. Here is the text from the recent announcement: […]
10 Basic Facts About CF
Cystic Fibrosis News Today recently posted an article listing 10 Facts About Cystic Fibrosis. Those living with CF won’t find anything new in the list. However, we’re repeating the list […]
CFFC Facebook Posts – February 2016
For those of you who don’t follow CFFC on Facebook, here are the original posts made to our page during February 2016 (plus the last few days of January). 01/28/2016 […]
January and February 2016 Clinical Trials
CFF provided information on the following clinical trial: 01/16/2016– Study of In-line Digestive Enzyme Cartridge (RELIZORB) in people with CF who are currently receiving enteral tube feedings This Phase 4, multi-center […]