Report from the NACFC
CFFC recently received a “customer’s” view from the 2015 North American Cystic Fibrosis Conference (NACFC). CFFC sponsored attendance at the NACFC for Chris Kvam. You may be familiar with Chris’ […]
Evolution in Adult Care
We have received exciting news from URMC regarding their approach to caring for individuals with chronic conditions that originated in childhood (including cystic fibrosis). The Complex Care Center (CCC) is […]
CF Peds Clinic Update
CFFC representatives recently met with the staff of the Rochester CF pediatric center to explore ways our organization could lend a hand to clinic staff. One major topic of discussion […]
CFF Community Blog Highlights – December 2015
The CF Foundation hosts a community blog to “share some of our favorite blog posts that represent the reality of living with CF.” Here are the links to blog entries […]
36th Annual Kit Taylor Memorial Lecture
Mark your calendar on April 5, 2016 for the 36th Annual Kit Taylor Memorial Lecture. The speaker will be Dr. Patrick Sosnay. Dr. Sonsay is a member of the adult CF […]
October and November Tidbits on Facebook
CFFC publishes tidbits of information about CF and CFFC on its Facebook page with historical information is posted on “Throwback Thursdays” (TBT) and Monday posts under the heading “Did You […]
November 2015 Clinical Trial
CFF provided information on the following clinical trial: 11/10/2015 – Phase 2 safety study of N91115 in adults with CF with two copies of the F508del-CFTR gene mutation who are currently […]
September and October 2015 Clinical Trials
CFF provided information on the following clinical trials: 09/04/2015 – Phase 1b safety study of QR-010 in adults with CF with two copies of the F508del-CFTR gene mutation This is […]
CFF Community Blog Highlights – November 2015
The CF Foundation hosts a community blog to “share some of our favorite blog posts that represent the reality of living with CF.” Here are the links to blog entries […]
CF Foundation Introduces Community Blog
The CF Foundation recently introduced a community blog to, in the words from their announcement, they “wanted to share some of our favorite blog posts that represent the reality of […]