Add Your Voice to Advocacy

The Cystic Fibrosis Foundation is asking for our assistance in their advocacy for important programs. Read their announcement below including links for contacting your legislators. Today, advocates from across the […]

CF on the Other Side of the World

It’s easy to get bound up in the day to day business of managing your life with CF. Given the focus on the personal aspects of CF, you may lose […]

Share Your Thoughts About the Cost of CF

The Cystic Fibrosis Foundation is sponsoring a survey to assess the costs associated with life with CF. The link below launches an informed consent form that contains more details about […]

Listening Opportunities

In case you do not receive “Together: a Community Update” from the Cystic Fibrosis Foundation, we are sharing the announcement of three virtual programs that will be offered over the […]

Order Your 2023 Holiday Decor

Although we haven’t had our first frost yet, it’s not too early to think ahead to the holiday season. CFFC is pleased to announce that we are now accepting  orders […]

The Return of Family Day

Our board of directors regularly reviews CFFC’s programs to ensure they are meeting the needs of our local CF community. Our annual educational event is no exception to this approach. […]

Opportunity for Clinical Trial

CFFC received a request to share information regarding a clinical trial investigating phage therapy for treating Pseudomonas aeruginosa. The request came from Pranita D. Tamma, M.D., M.H.S., Associate Professor of […]

Golfers Give CFFC a Boost

Mother Nature produced a perfect morning for the 2023 edition of CFFC’s Living with CF Golf Tournament. 32 players teed off on Saturday, September 9th for nine holes of scramble […]