Family Day 2024 Update
We are a little more than a month away from CFFC Family Day 2024 at Wickham Farms. To help us finalize the plans for the day, we are asking for […]
Important News on Two CFFC Programs
CFFC is pleased to announce important updates on two of our major programs. Family Day As previously announced, CFFC Family Education Day is returning to an in-person event at Wickham Farms on […]
Save the Date – CFFC Family Day
CFFC is pleased to announce the return to Family Day – an event to bring the entire CF community together for fun and support. Thanks to the responses to our […]
Add Your Voice to Advocacy
The Cystic Fibrosis Foundation is asking for our assistance in their advocacy for important programs. Read their announcement below including links for contacting your legislators. Today, advocates from across the […]
CF on the Other Side of the World
It’s easy to get bound up in the day to day business of managing your life with CF. Given the focus on the personal aspects of CF, you may lose […]
Share Your Thoughts About the Cost of CF
The Cystic Fibrosis Foundation is sponsoring a survey to assess the costs associated with life with CF. The link below launches an informed consent form that contains more details about […]
Listening Opportunities
In case you do not receive “Together: a Community Update” from the Cystic Fibrosis Foundation, we are sharing the announcement of three virtual programs that will be offered over the […]
Order Your 2023 Holiday Decor
Although we haven’t had our first frost yet, it’s not too early to think ahead to the holiday season. CFFC is pleased to announce that we are now accepting orders […]
The Return of Family Day
Our board of directors regularly reviews CFFC’s programs to ensure they are meeting the needs of our local CF community. Our annual educational event is no exception to this approach. […]
Opportunity for Clinical Trial
CFFC received a request to share information regarding a clinical trial investigating phage therapy for treating Pseudomonas aeruginosa. The request came from Pranita D. Tamma, M.D., M.H.S., Associate Professor of […]