CFFC Facebook Posts – September 2020 – Part 1
09/01/2020 – Preventing infection, facilitating healing: New biomaterials from spider silk – Science is a fascinating thing; especially when benefits come from unusual sources. [BTW: Think twice before you kill […]
Survey Opportunity: COVID-19 Vaccine
Cystic Fibrosis Foundation is seeking input from the CF community regarding the potential COVID-19 vaccine(s). Here is their call for participation. The CF Foundation is committed to advocating for the […]
CFFC Facebook Posts – August 2020 – Part 2
08/16/2020 – Living with CF Golf Tournament – This year’s Living with CF Golf Tournament has a special meaning. The COVID-19 protocols – masks and social distancing – give us […]
Clinical Trial Alert – August 2020
Cystic Fibrosis Foundation issued the following clinical trial alert on August 24, 2020. Study to evaluate the effects of CFTR modulators in infants and young children (BEGIN) Status: Enroling Description: […]
CFFC Facebook Posts – August 2020 – Part 1
08/01/2020 – With School Reopening, How Do I Know I Can Trust My Classmates? – Gunnar Esiason shares his thoughts on the prospects of returning to school (including an extrapolation […]
Survey Opportunity: Your Health Information
Cystic Fibrosis Foundation is gather your views on health data. The survey also includes an opportunity to volunteer for a working group on the topic. Here is the announcement from […]
CFFC Facebook Posts – July 2020 – Part 2
07/16/2020 – Living with CF Golf Tournament 2020 – Mark your calendars, and keep your fingers crossed, for the 2020 edition of CFFC’s golf tournament. 07/17/2020 – NIH Grant Supports […]
CFFC Annual Report 2020
CFFC completed another fiscal year on June 30, 2020. The financial results of that year are presented in CFFC Financial Statement 06302020. The cumulative revenues and expenses since CFFC was […]
Survey Opportunity: Prioritize Mental Health Research Topics for the CF Community
The mental health aspects of CF do not get the same public exposure as the advances in medical treatments. Cystic Fibrosis Foundation is looking to prioritize research into mental health […]
Ineligibility/Unable to Benefit from Approved CFTR Modulator Therapies
Cystic Fibrosis Foundation is seeking to form an ad hoc group of individuals who are unable to take CFTR modulators. Here is the announcement from Community Voice: To support the […]