Publications from Cystic Fibrosis Australia
Cystic Fibrosis Australia has produced a wide range of brochures covering all aspects of life with CF. While some of the material is specific to Australia, the majority of the […]
Clinical Trial Alerts – September 2019
Cystic Fibrosis Foundation issued the following clinical trial alerts in the month of September. September 17, 2019 Study of QBW276 in adults with CF Status: Completed with results Description: This […]
CFFC Facebook Posts – September 2019 – Part 1
09/01/2019 – Clinical Trial Alerts – August 2019 – Cystic Fibrosis Foundation released several clinical trial updates in August, most of which provide reports of competed trials. 09/02/2019 – MAC […]
Living with CF Golf Tournament – 2019 Results
After last year’s break in the action, CFFC’s Living with CF Golf Tournament returned in 2019 with good spirits, good weather and, as a result, good golf. Eighteen golfers gathered […]
Public Comment Opportunity on Value of Potential New Therapy
You have the opportunity to add your thoughts to research that will be provided to health care decision makers. Here’s the announcement distributed by Cystic Fibrosis Foundation. The Institute for […]
Resources for Supporting Families Coping with Chronic Illness
While cystic fibrosis presents many unique challenges, people living with CF share experiences with individuals dealing with other chronic illnesses. Online MSW Programs produced a comprehensive list of resources to […]
CFFC Facebook Posts – August 2019 – Part 2
08/16/2019 – Comment Period for Palliative Care Guidelines – Draft guidelines from the Cystic Fibrosis Foundation call for the incorporation of palliative care in the CF treatment plan from diagnosis […]
Clinical Trial Alerts – August 2019
Cystic Fibrosis Foundation issued the following clinical trial alerts in the month of August. August 7, 2019 Study to evaluate the effects of the triple-combination modulator, elexacaftor/tezacaftor/ivacaftor (PROMISE) Status: Enrolling […]
CFFC Facebook Posts – August 2019 – Part 1
08/01/2019 – Data Safety Monitoring Board – This article describes the safety oversight that the CF Foundation provides for clinical trials in addition to the procedures employed by government agencies […]
Comment Period for Palliative Care Guidelines
A team sponsored by Cystic Fibrosis Foundation (CFF) has produced draft recommendations for models of best practices for palliative care in CF. Members of the CF community has the opportunity […]