Making Holidays Happier
It is CFFC’s mission to support CF patients and families in their daily struggle with cystic fibrosis. In this period of increased isolation, “support” can be as simple as letting […]
NACFC 2020 Sessions Available on YouTube
Cystic Fibrosis Foundation has announced the availability of videos from the 2020 North American Cystic Fibrosis Conference (NACFC). CFF has created a YouTube page that links to recordings from 56 […]
Vote Safely in 2020
In recognition of the policy issues that may have a significant impact on the CF community, Cystic Fibrosis Foundation is offering information on those issues as well as guidance avoiding […]
CFFC Annual Report 2020
CFFC completed another fiscal year on June 30, 2020. The financial results of that year are presented in CFFC Financial Statement 06302020. The cumulative revenues and expenses since CFFC was […]
Ineligibility/Unable to Benefit from Approved CFTR Modulator Therapies
Cystic Fibrosis Foundation is seeking to form an ad hoc group of individuals who are unable to take CFTR modulators. Here is the announcement from Community Voice: To support the […]
CF Foundation Statement on COVID-19 Preparedness
The following statement was released on March 11, 2020 by Dr. Michael Boyle, Cystic Fibrosis Foundation, President and CEO. We take our responsibility to the CF community seriously. For the […]
Trikafta Up Close and Personal
Of course, the CF community is all abuzz with the news about Trikafta. As with such significant advances, the focus is on the benefits and promising future. But there is […]
Announcing Tune Up Tins
Cystic Fibrosis Family Connection is excited to announce the start up of a new program: the Tune-Up Tin! Tune-Up Tins are designed to give you a break from the routine […]
Publications from Cystic Fibrosis Australia
Cystic Fibrosis Australia has produced a wide range of brochures covering all aspects of life with CF. While some of the material is specific to Australia, the majority of the […]
Living with CF Golf Tournament – 2019 Results
After last year’s break in the action, CFFC’s Living with CF Golf Tournament returned in 2019 with good spirits, good weather and, as a result, good golf. Eighteen golfers gathered […]