Know Your CFTR Mutation

Understanding the mutation that produces your particular version of CF is more than scientific curiosity; it holds the key to the progression of the disease and the treatments that may […]

Clinical Trial Alerts – December 2017

Cystic Fibrosis Foundation distributed the following clinical trial updates during the month of December. Click the trial title to get more details. The following alert was issued on December 1, […]

Home Energy Assistance Program 2017

Marcy Odell, social worker at the pediatric CF Center shared the following announcement: HEAP opens on Monday, November 13, 2017.  New York State Office of Temporary and Disability Assistance and […]

Clinical Trial Alerts – October 2017

Cystic Fibrosis Foundation distributed the following clinical trial updates during the month of October. Click the trial title to get more details. The following alerts were distributed on October 13th: […]

Improve the Experience of Care Survey

The CF Foundation is looking to shorten the survey distributed by CF centers after clinic visits. Here’s their message: Topic: Experience of Care Survey Opportunity: 5 Minute Survey Respond by: […]